Patient support groups
Patient advocacy and support groups for EDDs
pEDD (Palmoplantar Keratoderma / Pachyonychia Congenita)
International support and research network for pachyonychia congenita (PC) and other rare palmoplantar keratodermas (PPK).
nEDD/sEDD (Ichthyosis)
Association Ichtyose France
Asociación Española de Ictiosis
Foundation for Ichthyosis & Related Skin Types
International Ichthyosis Network
Selbsthilfe Ichthyose e.V.
Charity for individuals and families living with all forms of ichthyosis.
The Dutch network for ichthyosis.
Unione Italiana Ittiosi
Epidermolytic nEDDs (Epidermolytic Ichthyosis)
International support and research organization for epidermolytic ichthyoses.